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Below are the 19 most recent journal entries recorded in Living with Tinnitus' LiveJournal:

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Sunday, March 6th, 2011
4:07 am
[tinnire]
Introducing TinnitusTalk.com and a few words about my own experience with the T
Stumbled upon LJ's Tinnitus Talk via google, and thought what the heck, we seem to have the same title and the topic is the same, so why not introduce the new Tinnitus Talk community while telling a little bit about my own T history.

13+ months ago I was a happy 24-year-old, who really didn't know what life had planned for.

About that time I had a problem with my ears, excessive wax. My ears have always produced quite a lot of wax, but for some reason they upped the production a year ago.

Fast forward a few weeks and I had to go a doctor, asking for my ears to be cleaned (I knew Q-tips aren't good!) and he promptly sent me to the nurse who performed the syringing.

Ears cleared! I can hear again.

Wait, what. I can not only hear the ambient sounds, but I also hear some kind of a ringing and clicking sound. That's not right, no, I've never heard this and this doesn't seem to be coming from any external source.

I got worried at that exact moment. I knew the term tinnitus, we had had lectures in school about tinnitus and how everyone should protect their hearing. I was informed.

I hoped the noises would go away within a short while, but they didn't. Same time I started googling tinnitus related blogs, articles, etc, and started getting really worried. "This has been going on for a month now, this can't be temporary tinnitus anymore...."

I found solace in the fact that tinnitus seemed to be classified as chronic only after 6-12 months, depending a bit on source.

I wait, kept waiting... kept waiting.

No, this ain't going away. Everyday the same noise. All the time. No pauses.

Today, I'm not anymore _that_ anxious about the T, all the time. Sometimes yes, but mostly I've learned to accept this condition and can learn semi-normal life with my ambient noise setups etc (like sound generators, pillow speakers).

I then kept on trying to find good communities for T sufferers, but there were only few, and most of them were pretty dead. One or two were more active, but their layouts and forum software were from the last decade - not good, since I have an eye for beautiful things... :)


If I'm going to live with the T for the rest of my life, or until a working cure is found, why not take everything from it and set up a new and working community for fellow T people. That's what I basically did.

Let me present you my baby, Tinnitus Talk, http://www.tinnitustalk.com

What I hope is that you ElJayers from this LJ's Tinnitus Talk journal come over to tinnitustalk.com and be part of that community.

You, maybe even I, have lots to give (and, hopefully, get) to a central community for those with T.


Here's hoping for a better spring,
Markku from http://www.tinnitustalk.com

Current Mood: optimistic
Wednesday, November 24th, 2010
9:21 pm
[kasumi_]
hopefully I'm not too late in finding this community
Hello all, 21 year-old female from Canada here, and I strongly suspect I may have tinnitus. Though, this may be too soon of a self-diagnosis as I've only been experiencing it solidly for about four days now (but oh, what a four days it has been).

I think it might have been sound-induced since I recently attended a concert on the 17th of this month and thought the ringing would go away within a day or two, as is common with events like this (silly me, I didn't even think of wearing ear-plugs). Because of this, I thought nothing of it and thus paid no attention to it. However, here I am a week later and the high-pitched ringing still remains in my left ear, louder than ever. I visited my doctor yesterday and he basically told me that nothing can be done to help, that I should endure for a few more days before seeking more medical attention to see if it quiets down on its own.

Unfortunately, I've also been experiencing knee and eye complications for the first time recently, and now this on top of everything has been causing me great anxiety and/or depression (I think it might be a bit of both, it's hard to tell at this point), to the point where I can barely eat or sleep. :( I have never experienced anxiety problems before now, and meditation videos/recordings have had no effect so far.

For the past few days I've been constantly listening to various noise and sound recordings I've found online, this being one of my favourites, though far too short. It seems to help quite a bit but as soon as I stop, the ringing is, predictably, back again. I've noticed mornings are when it is the loudest and most crippling, and this is when I can't really do anything else other than lie down.

I guess I'd just like to hear about what coping/treatment methods (if there are any) are working for people, as well as general advice for someone potentially new to this condition. Thank you so much in advance for any replies.

Current Mood: exhausted
Monday, December 28th, 2009
2:09 am
[raintrees]
New kind of T consultant
Hey People, do check out this guy's videos on youtube.
I found them very helpful. I bought his e-book on T
and will see what next.




Saturday, November 28th, 2009
9:15 pm
[zaftgirl]
I'm someone new.
My name's Cherry, currently 21 years old woman diagnosed with SEVERE depression O_O''''

I know this would be coming.

I just never imagined it would be this insane!

I've been recently diagnosed with Tinnitus - and I've grown VERY sensitive to simple noises like even the TV being on o_O'''''''''''''' And since there's no cure for this crap (or one that I can even afford), I'm just told to endure it.

Easier said then done.

My fiance recently lost total hearing of the right ear and I applaud my honey for being able to cope with it.

But I'm not my honey. I'm me. I'm depressed and suicidal.

I hear humming and all this constantly. I've not been using my headphones for like weeks. I dream of being a voice actress and also an actress. I dream of working with Tri Ace and Square Enix. While I can READ my lines out without having to hear them, I don't think they'll hire me if they find out that I'm totally deaf.

........This is it -_-...........my life is fucked.

-_-......*head/desks* I also heard that even if I lose my hearing completely, THE RINGING might still stay.

Great Odin's Raven I would rather DIE then face this O________O''''''''''
Monday, November 16th, 2009
1:38 am
[raintrees]
Scenar Treatment
I wonder if anyone have heard of Scenar treatment for tinnitus.
I have being using it for a year now. There is some progess although
it is gradual and slow. I used to wake up in the morning with the sound
in my ears totally unbearable. Now, after using the Scenar on myself, the
morning is not that bad, it is as same as other time during the day.
Monday, December 15th, 2008
8:06 pm
[verstandpendel]
An interesting article - is a tinnitus a form of chronic pain?


I have found an interesting article about the concept of tinnitus. This concept seems to me to be very rational. Pay the attention on words: 'Such changes in the central nervous system may have been induced by peripheral processes such as tissue damage, but the changes can persist a long time after complete healing of a peripheral lesion.'  

Here is the abstract:

Similarities Between Chronic Pain and Tinnitus. 

Editorial 
American Journal of Otology.
18(5):577-585, September 1997.
Moller, Aage R. 

Abstract: 
Objective: The aim of this study is to review hypotheses about the mechanisms of chronic pain and to compare them with that of tinnitus. Hypotheses about the pathophysiology of severe tinnitus and chronic pain have been of mainly two kinds: one of which claims that pathology located in the periphery (the ear for tinnitus, and peripheral nerves for pain) can explain the symptoms, while the other claims that the symptoms are caused by changes in the function of nuclei of the central nervous system.

Data Sources: A search of the literature from the past 35 years was used.

Conclusions: There is considerable evidence that both chronic pain and some forms of tinnitus are caused by changesin the central nervous system and that the anatomic location of the physiologic abnormality causing the symptoms of chronic pain and some forms of tinnitus is not the same location to which the symptoms are referred, i.e., the ear for tinnitus and the location of injury for pain. Such changes in the central nervous system may have been induced by peripheral processes such as tissue damage, but the changes can persist a long time after complete healing of a peripheral lesion. Different forms of tinnitus may respond to different treatments as is the case for chronic pain. If the different forms of tinnitus cannot be separated, then the results of studies of the efficacy of different kinds of drugs may be misleading.

Sunday, December 14th, 2008
2:56 am
[vagin4]
Hey, everyone.

I came into contact with tinnitus in March, of this year. I've self diagnosed myself. 

It all began when I went to one of my friends computer LAN birthday parties, which basically means... We were sitting in an internet cafe, with headphones on, playing videogames. Lots of gunshots and noise, but I'm not sure if that's what triggered it... Because I doubt I had the headphones up that loud.

I came home after the party and as soon as I entered my silent room, there was this roar... Almost an echo in my ear. Kind of like the ocean, but more accoustic. For a few days afterwards, instead of a roar it was a ringing in my right ear. This went on for a while and it was pretty concerning at the time.

I have a bit of an anxiety order, so I tend to react to things with abnormal anxiety. So this wasn't a good situation for a while. I couldn't handle it properly.

I went and saw a doctor, who wasn't my normal doctor, for my tinnitus. He was the biggest prick of a doctor I've ever met in my whole life. He took every oppurtunity to make a snide comment about the music I listen to and even the clothes I wore. When I got tired of his trivial back chat, I asked him to help me. Not criticize me. He didn't take it very well. So he ended up cleaning out my ears with one of those water pumps, I'm not quite sure what they're actually called.

My ears felt better, but the noise was still there. So when symptons persisted, I saw my regular doctor. He didn't think it was anything permanent and reccomended I take some ear drops for a few days. I did so.

Now, months later... The noise is still there. It's more of a combination of sounds in my ear now, but they are irritating. I still only notice them in quiet rooms, but ever since having my ears cleaned out and treated... They've never stopped crackling. Crackling and popping. Whenever I swallow or yawn, my ears crackle. Sometimes they don't, but usually they do. And it's worse when I'm sick.

Is the above anything to be worried about? I've heard that tinnitus can lead to being deaf if you don't take more care of your ears. But the crackling thing, is that indicating anything, or is that just something I have to live with?

Tinnitus has slightly crippled my life... In that I love music, I love concerts.... But I haven't been to a concert in a long time and I avoid going to the cinema too often. I have a few times, but I wear ear plugs to the cinema.

My anxiety makes things much worse. Sometimes I convince myself I'm going deaf, even though people around me tell me I'm not. I have a phobia of going deaf... It's just something that scares the shit out of me.

Anyway, I thought I'd share my expierience with other people that have my problem on here and maybe get some feedback on my problem. It's really appreciated. It makes things a little easier knowing I'm not alone. I read up on the internet and quite a lot of celebrities suffer from tinnitus.

Thanks.
Tuesday, October 28th, 2008
5:46 pm
[verstandpendel]
Newbie here
Hallo everybody!

I got my tinnitus  a month and half ago. Just after i left my job. One morning two weeks later I awake and heard a constant tone of high frequency like a table computer working.

I thought I went crazy  - this tone was inside my head. Two days I spent im my flat not coming outside. My friend's call made me visit an otologist (ENT) - he checked my ears and made a tonal audiometry - I have a slight hearing loss at 8 Khz frequency - others frequencies are normal. He said - there is a nerological problem and sent me to a neurologyst.  The neurologyst made me a transcranial brain vessels  dopplerography (brain blood flow measuring - my translation from Russian) and said that the left back brain artery blood flow is substantially low. She said also the problem may be in osteсhondrosis  in my neck due  to the sitting way of my job and lack of sport activity.

She also prescribed me Ipidacrine,  Nicergoline (the international latine names - they are called fifferently in Russia) and Milgamma  Compositum.  I had also to wear a special neck corset for two hours every day. After three weeks she said I had to switch all medicine to Vasobral.

After this four weks my noises have changed - the high pitched tone is almost gone but the new one has happened - like hissing.  This hissing is sometimes going down after a shower - so that I am taking shower two or three times a day. It is defenitely better that it was before. 

I am 37 y old male living im Moscow (Russia).  I will be glad to paricipate in your tinnitus discussion and to compare the cure methods.  

Current Mood: hopeful
Saturday, August 9th, 2008
8:17 am
[cyka]
does anyone know the relation between air pressure and tinnitus volume?

the last few days, according to the weather reading, the air pressure has been 1010hpa. normally it's around 1006-8hpa. but in the last days when it's been 1010hpa, the noise in my ears is so loud that it reduces me to tears and i have to resort to valium because even the hypnosis recordings aren't helping.

anyone else notice anything like this happen to them?
Monday, June 16th, 2008
5:27 pm
[uu_mom]
Hi all! Newbie here. Top 6% - owww!
My tinnitus started on Oct. 4, 2007. I will never forget the day (well, you have to understand this is an expression as I've learned that I have the rare condition "early onset frontal atrophy" so maybe I will forget). Any way, it started with what felt like a severe ear infection. To make a long story short, even though I was finally diagnosed with "TMJ", I have few of the normal symptoms (no grinding or clenching) and my night guard has been determined to possibly be too severe since it starts causing a problem with my other ear, so I'm not using it.

I was prescribed Ativan to help reduce the volume. It sometimes helps, but not consistently enough. It's too loud for white noise - my husband uses white noise, but mine is like 10 times as loud as his.

So basically, I listen to music or other distracting sounds and I try to keep my mind off of it (actually joining this community is bad for that).

Any other suggestions?
Wednesday, June 11th, 2008
11:44 pm
[pkbarbiedoll]
I'm going crazy
My T started 5 years ago after having surgery. I believe the oxycodone or something in the anesthesia brought it on. It was horrible for at least a year or two. Then maybe I grew used to it. Or maybe it subsided a little.

In any case.

Last weekend I drank 4 cans of my roommates Dr. K Diet cola from Kroger. Two days later, my tinnitus came back in my left ear with a vengence! It is soooo loud! I am having a very hard time concentrating at work, and yes I do have a fan and music going in the background - as much white noise as I can get away with at work.

So, I read that aspartame can cause T. I've had it in the past without this kind of reaction.

Has anyone else had a super bad reaction to aspartame when you used to not be bothered by it? Will the T subside soon? I can't imagine living the rest of my life like this. it is incredibly loud.
Tuesday, May 13th, 2008
1:47 am
[jakkismagic]
Introduction
I am so glad I found this group.

My name is Jakk, I am 17, and I live in San Diego with my parents and my animal menagerie.

I have never had a problem with my hearing until one morning when I woke up and it was like someone hit in me in my inner ears with a baseball bat. For two months it sounded like I was in a tunnel, people sitting right next to me sounded a room away, and the noise started...quite and in the background. I told my mother and she just said "oh, I'll make an appointment right away"

Well a now, year later, it doesn't sound like people are far away and I don't have tunnel hearing but that noise...that god awful pulsating high pitched screech.... has taken over my head. I can't focus on school lessons because, quite frankly, I can barely hear my teachers. Coupled with my insomnia (I have had primary insomnia since I was very young), real sleep is maybe a twice a week treat. My mother isn't going to make that appointment no matter how many times I ask her to and even if there was something a doctor could prescribe she refuses to medicate anyone in the family but the dog.

I guess my biggest questions are:

Is there anything I can do to combat the noise (even a little bit) or that I can ask my teachers to do in order to make school easier?
and
How in the hell can I convince my mom there is a problem?

Frustrated yet glad,
Jakk
Monday, March 31st, 2008
9:18 pm
[painangrrfear]
Introduction
Hi. I'm posting seeking advice on behalf of my son who has recently started having tinnitus. He is thirteen years old and we've had him seen by his pediatrician, an ENT, and an audiologist. No one can find a cause other than the obvious "shit happens". Next stop is a neurologist. He's had the tinnitus for about seven months now and everything I've read seems to indicate that this is probably something he's just going to have to live with.

The tinnitus bothers him most at night, so we've set up a CD player by his bed so he can play music to try and drown out the ringing in his ears. He has one of those 'soundscape' CDs with the sound of surf accompanying sort of new-agey-type music. Sometimes he just listens to his regular music CDs.

Does anyone have any other methods for dealing with tinnitus? Any advice would be much appreciated! Thank you.
Thursday, February 7th, 2008
10:39 pm
[another_lobster]
This is a self portrait illustrating my personal battle with the horrors of tinnitus. It is both literal and abstract, and is entitled "The Treble Is the Trouble"
I didn't know where to exhibit it, but I think you all should understand.



Wednesday, February 6th, 2008
5:27 pm
[call_me_lovey]
confused
Hiya,

I've had my ears checked & the dr. said they were fine. The ringing in them, mostly the left one, is quite loud all the time, my ears twinge, itch & ache too. I am *terrified* of getting a hearing loss. I'm always asking loved ones to turn the TV down, but surely I'd be asking for it to be turned up if I had a loss? I've had various comments along the lines of, "Why do you want/need a hearing test, your hearing is *fine* ...... you're *obsessed*........" Sigh.

I've been going to concerts for a couple of years. I love rock & blues music. I've been in contact with people who've been going to concerts for *years* & they've said their hearing is fine.
I've got cerebral palsy & listening to music is one of the few ways I can occupy myself unaided. I never have it on too loudly [I can't bear loud noises *anyway, I jump all over the place] /too long. I have it on so quiet you can hardly hear it!
I won't have to give up listening to music, will I? I'll go mad thinking about my disability then.
Sunday, February 3rd, 2008
3:38 pm
[ozreison]
Tinnitus Retraining Therapy
I was wondering if anyone had experience with a program of Tinnitus Retraining Therapy? If so, did you find an improvement in living with your symptoms?
Wednesday, January 9th, 2008
12:29 pm
[ozreison]
New hope for tinnitus sufferers
There is an article on the BBC website today regarding tinnitus, and some new discoveries that may lead to better treatment and possible cures in the future.
Saturday, December 15th, 2007
3:26 am
[megazoid]
Did anyone get rid of tinnitus or, maybe, could it just disappear by itself at some point?
Friday, December 14th, 2007
10:21 pm
[ekh_78]
Is this wired?
I thought that lj must have a community for people with tinnitus. Here’s the thing. Some years ago I got tinnitus every time I sat in front of my computer, but after a few weeks it disappeared, a year ago I got tinnitus every time I was in a car after a few weeks it disappeared, and now I have started to get tinnitus every time I’m in front of a computer again. Has anyone else had tinnitus that just comes at specific situations? Is that heard of?
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